This is an entirely new world that we’ve so completely absorbed it feels like we’ve had Down syndrome all along and therefore find it fairly unremarkable. We haven’t lost our identities to a diagnosis, or we have and I haven’t noticed.
Families with special needs come in all different packages. Some require more support than do others. You can’t lump us all together, even when we have the same diagnosis. Our children are as individual as are our family dynamics. But we do have some similarities.
What about the times when Hope refuses to sign or gesture or flat out do anything except melt into the floor in a sobbing heap of inconsolable toddler frustration?
We may have no clue where we are headed or what the road will feel like beneath our uncalloused feet, but we go because the only thing worse than hurting trying is the fear of looking back at time wasted.
Why a DS diagnosis doesn’t automatically open doors to therapy is at least a thinly veiled prioritization of state funding that doesn’t value this vulnerable population.
When we set up At Her Own Pace this past summer, I struggled over whether this was a self-serving or selfless venture. After all, we had quit most forms of […]
The world needs to know that Hope isn’t just going to grin and bear experiences that displease her.
Mainstreaming—including children with special needs in a typical classroom—is something we think about regularly, despite Hope’s young age. We think about when we will introduce her to our town’s public […]
Many couples make the gut-wrenching decision to terminate their pregnancies for reasons that are nearly impossible for the average person to comprehend. My heart breaks for the families that can’t […]
“If you’re always holding her while she naps, you’re going to spoil her.” Exactly. A lot of people are shocked that we hold Hope for her two daily naps, including […]