Families with special needs come in all different packages. Some require more support than do others. You can’t lump us all together, even when we have the same diagnosis. Our children are as individual as are our family dynamics. But we do have some similarities.
What about the times when Hope refuses to sign or gesture or flat out do anything except melt into the floor in a sobbing heap of inconsolable toddler frustration?
From what nearly every acquaintance had to say about it, learning to walk would be one of the greatest offenses our daughter would ever commit against her parents. Doesn’t this all sound so ludicrous? We thought so, too.
During Hope’s hospital stay, the days and nights all blended together. The sun kept our internal clocks on track, but our days didn’t start until the medical team made its […]
We may have no clue where we are headed or what the road will feel like beneath our uncalloused feet, but we go because the only thing worse than hurting trying is the fear of looking back at time wasted.
One day when Hope was 23 months old, she just got it in her head that she could stand like anyone else and persisted until she was totally upright.
We want Hope to be motivated from a place within herself. Her reward for succeeding is self-confidence.
Hope underwent her sleep study this past August, referred by her developmental pediatrician following recommendations by the American Academy of Pediatrics to screen for obstructive sleep apnea (OSA) in children […]
Why a DS diagnosis doesn’t automatically open doors to therapy is at least a thinly veiled prioritization of state funding that doesn’t value this vulnerable population.
Eight days passed between Hope’s operation and her hospital discharge, which may not seem like a long time, but the days passed slowly and painfully. When Hope emerged from surgery, […]