During Hope’s hospital stay, the days and nights all blended together. The sun kept our internal clocks on track, but our days didn’t start until the medical team made its […]
We may have no clue where we are headed or what the road will feel like beneath our uncalloused feet, but we go because the only thing worse than hurting trying is the fear of looking back at time wasted.
One day when Hope was 23 months old, she just got it in her head that she could stand like anyone else and persisted until she was totally upright.
We want Hope to be motivated from a place within herself. Her reward for succeeding is self-confidence.
Hope underwent her sleep study this past August, referred by her developmental pediatrician following recommendations by the American Academy of Pediatrics to screen for obstructive sleep apnea (OSA) in children […]
Why a DS diagnosis doesn’t automatically open doors to therapy is at least a thinly veiled prioritization of state funding that doesn’t value this vulnerable population.
Eight days passed between Hope’s operation and her hospital discharge, which may not seem like a long time, but the days passed slowly and painfully. When Hope emerged from surgery, […]
Our little one has proved to us she’s not afraid to work, but she’s not willing to work for something she doesn’t feel is worth it.
When I was 16 weeks pregnant, we learned two frightening things: In the short term, our infant daughter would undergo open heart surgery, and in the long term, statistics showed […]
If your child has a developmental delay, you know you’re going to be waiting some extra time for communication milestones, and while you’re waiting, your baby is likely growing frustrated.