I never really knew where we would fit into this awareness month until January 2020 when Henry, Hope’s baby brother, was denied entrance to an age-appropriate preschool because of his upper limb difference.
There is no greater gift you can give this World Down Syndrome Day than to consider whether you have room to shift your perspective on what makes a person valuable and what you or your family can do with this privilege.
In the spirit of virtual advocacy, this year we accepted the new NDSS 32.1-mile challenge, which kicks off tomorrow and runs for three weeks. Matt will be rowing his way to 32.1 miles and I’ll be on our Peloton bike, riding under the #Racingfor321 tag. (If you’re on Peloton, please join us!!!)
Instead of being scared by tests and appointments, just buckle up and enjoy the crazy ride, because whether your pregnancy is typical or not, your baby will thrive if you smile, laugh, throw your arms up, and declare an unconditional love.
Take a moment to enjoy the beauty of Hope’s fifth year, which has been our true blessing to witness. Happy 5th birthday, Hope!!
Hope’s equitable place in this world hinges on your ability to control the urge to return to a time that no longer exists. If you can’t do this for yourself, do it for Hope. I promise, when the time comes, she will reciprocate ten-fold the love you’ve shown her in this moment.
Happy Down Syndrome Awareness Month! We advocate not because we want to, but because we need to. We celebrate because we can. Thank you for celebrating with us this year!
This is the story of a playdate. The playdate. Our children’s first, actual playdate since the term “social distancing” became a mainstay in our vocabularies, a progression from the stay-at-home orders that were put in place in March. This was our one and only playdate of the summer.
While most of our time home during the pandemic has been flooded with good intentions and expertise, there is little evidence-based guidance to draw from during what we all know is this “unprecedented time.”
Maybe you discover that it really doesn’t matter if your preschooler can tell the difference between a square and a rectangle, considering she conquered the potty and straw drinking on your watch since being home during the COVID-19 outbreak.