Hope underwent her sleep study this past August, referred by her developmental pediatrician following recommendations by the American Academy of Pediatrics to screen for obstructive sleep apnea (OSA) in children […]
Why a DS diagnosis doesn’t automatically open doors to therapy is at least a thinly veiled prioritization of state funding that doesn’t value this vulnerable population.
Eight days passed between Hope’s operation and her hospital discharge, which may not seem like a long time, but the days passed slowly and painfully. When Hope emerged from surgery, […]
Our little one has proved to us she’s not afraid to work, but she’s not willing to work for something she doesn’t feel is worth it.
When I was 16 weeks pregnant, we learned two frightening things: In the short term, our infant daughter would undergo open heart surgery, and in the long term, statistics showed […]
If your child has a developmental delay, you know you’re going to be waiting some extra time for communication milestones, and while you’re waiting, your baby is likely growing frustrated.
I can’t pinpoint the day when Hope started napping exclusively in our arms, but ironically, we lucked out last month on Friday the 13th when she took her first big girl […]
When we set up At Her Own Pace this past summer, I struggled over whether this was a self-serving or selfless venture. After all, we had quit most forms of […]
The world needs to know that Hope isn’t just going to grin and bear experiences that displease her.
First birthdays are incredible occasions, particularly when baby has survived her first time parents. That’s true in any case, but Hope had some additional hurdles with us. We had to […]