At Her Own Pace

Navigating Down syndrome care in northern New Jersey and celebrating the life of our daughter and her friends.

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Category Archives: Thoughts

A Second Child After Down Syndrome

January 31, 2021by @HerOwnPace 2 Comments

Instead of being scared by tests and appointments, just buckle up and enjoy the crazy ride, because whether your pregnancy is typical or not, your baby will thrive if you smile, laugh, throw your arms up, and declare an unconditional love.

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Thoughts

What Is on the Line for Us if Schools Close?

November 17, 2020by @HerOwnPace Leave a comment

Hope’s equitable place in this world hinges on your ability to control the urge to return to a time that no longer exists. If you can’t do this for yourself, do it for Hope. I promise, when the time comes, she will reciprocate ten-fold the love you’ve shown her in this moment.

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School, Thoughts

Maybe We Can Change the Way We See

October 9, 2020by @HerOwnPace 3 Comments

Happy Down Syndrome Awareness Month! We advocate not because we want to, but because we need to. We celebrate because we can. Thank you for celebrating with us this year!

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Information, Thoughts

Remote Learning Is Done…for Now…

July 31, 2020by @HerOwnPace 3 Comments

While most of our time home during the pandemic has been flooded with good intentions and expertise, there is little evidence-based guidance to draw from during what we all know is this “unprecedented time.”

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School, Thoughts

Social Distancing a Preschooler With Down Syndrome

April 30, 2020by @HerOwnPace 5 Comments

Maybe you discover that it really doesn’t matter if your preschooler can tell the difference between a square and a rectangle, considering she conquered the potty and straw drinking on your watch since being home during the COVID-19 outbreak.

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Moments, Thoughts

An Innate Power to Make a Difference

March 21, 2020by @HerOwnPace Leave a comment

This year is a little different: we will celebrate World Down Syndrome Day in isolation, but never alone.

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Moments, Thoughts

Weighing in on the Angel Debate

September 30, 2019by @HerOwnPace 2 Comments

We throw around words all the time, using hyperbole to force others to understand in the flicker of a moment the feelings we have spent days, months, even years cultivating. We don’t always mean what we say, and parsing language can often be an exercise in futility.

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Thoughts

Three Lessons in Bravery

May 12, 2019by @HerOwnPace 4 Comments

My children have taught me to be brave and to look past the superficialities of the world, straight down to what really matters. In my experience, this is what it takes to penetrate that final layer of anxiety in order to give my children the very best I can give.

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Thoughts

Sending a BIG Thank You on World Down Syndrome Day

March 21, 2019by @HerOwnPace 1 Comment

This is an entirely new world that we’ve so completely absorbed it feels like we’ve had Down syndrome all along and therefore find it fairly unremarkable. We haven’t lost our identities to a diagnosis, or we have and I haven’t noticed.

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Thoughts

The Secret Perks of Being a Special Needs Parent

September 14, 2018by @HerOwnPace 2 Comments

Families with special needs come in all different packages. Some require more support than do others. You can’t lump us all together, even when we have the same diagnosis. Our children are as individual as are our family dynamics. But we do have some similarities.

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Thoughts

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