What was frustrating Hope so much that she was resorting to these physical behaviors? After pinching me she would feel sad and cry and sign “sorry” before giving me a hug, which I of course always accepted but wished I could receive under different circumstances.
We may have no clue where we are headed or what the road will feel like beneath our uncalloused feet, but we go because the only thing worse than hurting trying is the fear of looking back at time wasted.
Hope underwent her sleep study this past August, referred by her developmental pediatrician following recommendations by the American Academy of Pediatrics to screen for obstructive sleep apnea (OSA) in children […]
Why a DS diagnosis doesn’t automatically open doors to therapy is at least a thinly veiled prioritization of state funding that doesn’t value this vulnerable population.
Eight days passed between Hope’s operation and her hospital discharge, which may not seem like a long time, but the days passed slowly and painfully. When Hope emerged from surgery, […]
When I was 16 weeks pregnant, we learned two frightening things: In the short term, our infant daughter would undergo open heart surgery, and in the long term, statistics showed […]
If your child has a developmental delay, you know you’re going to be waiting some extra time for communication milestones, and while you’re waiting, your baby is likely growing frustrated.
When we set up At Her Own Pace this past summer, I struggled over whether this was a self-serving or selfless venture. After all, we had quit most forms of […]
When we joined the Down Syndrome Parenting League last year (no, that’s not really a thing), two major events happened. First, we built an impenetrable wall between us, a.k.a. the […]