At Her Own Pace

Navigating Down syndrome care in northern New Jersey and celebrating the life of our daughter and her friends.

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Happy 5th Birthday, Hope!

December 24, 2020by @HerOwnPace 2 Comments

Take a moment to enjoy the beauty of Hope’s fifth year, which has been our true blessing to witness. Happy 5th birthday, Hope!!

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Milestones, Moments

What Is on the Line for Us if Schools Close?

November 17, 2020by @HerOwnPace Leave a comment

Hope’s equitable place in this world hinges on your ability to control the urge to return to a time that no longer exists. If you can’t do this for yourself, do it for Hope. I promise, when the time comes, she will reciprocate ten-fold the love you’ve shown her in this moment.

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School, Thoughts

Maybe We Can Change the Way We See

October 9, 2020by @HerOwnPace 3 Comments

Happy Down Syndrome Awareness Month! We advocate not because we want to, but because we need to. We celebrate because we can. Thank you for celebrating with us this year!

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Information, Thoughts

The Summer 2020 Playdate

August 27, 2020by @HerOwnPace 1 Comment

This is the story of a playdate. The playdate. Our children’s first, actual playdate since the term “social distancing” became a mainstay in our vocabularies, a progression from the stay-at-home orders that were put in place in March. This was our one and only playdate of the summer.

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Recreation

Remote Learning Is Done…for Now…

July 31, 2020by @HerOwnPace 3 Comments

While most of our time home during the pandemic has been flooded with good intentions and expertise, there is little evidence-based guidance to draw from during what we all know is this “unprecedented time.”

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School, Thoughts

Social Distancing a Preschooler With Down Syndrome

April 30, 2020by @HerOwnPace 6 Comments

Maybe you discover that it really doesn’t matter if your preschooler can tell the difference between a square and a rectangle, considering she conquered the potty and straw drinking on your watch since being home during the COVID-19 outbreak.

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Moments, Thoughts

An Innate Power to Make a Difference

March 21, 2020by @HerOwnPace Leave a comment

This year is a little different: we will celebrate World Down Syndrome Day in isolation, but never alone.

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Moments, Thoughts

Hope’s Fever of Unknown Origin

February 29, 2020by @HerOwnPace 2 Comments

Hope was admitted to the hospital four years ago today, yet this is the first time we’ve had to acknowledge the anniversary, thanks to common years safeguarding the memory since 2016. I’ve long promised the story of her 105-degree fever, so here we go.

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Medical

The Perspective Time Provides

November 12, 2019by @HerOwnPace Leave a comment

Whenever we meet families with older children who have Down syndrome, there is always one common thread among them—they’re calm.

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Milestones

Blessed With a Little Something Extra

October 21, 2019by @HerOwnPace 2 Comments

Our dreams are like any other parent’s dreams—we just have to fight a little harder to get there. Thank you for fighting alongside us. For smiling back when our daughter blows you a kiss. For continuing to vote for special needs funding. And for understanding that there is nothing wrong with having Down syndrome.

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