Join Us in NYC—It’s Not Too Late!
Turns out that on this incredible 30th Buddy Walk anniversary, alongside a few other families, we are being invited on stage and we would love you to be a part of our story!
Tag Archives: National Down Syndrome Society
World Down Syndrome Day: Celebration Through Advocacy
The article discusses World Down Syndrome Day, highlighting federal and local advocacy efforts. A mother and daughter lobbied on Capitol Hill for legislative priorities. Local activities included creating self-portraits at an art studio and encountering resistance in schools. The community grows stronger each year, emphasizing the extraordinary nature of children with Down syndrome.
Will You Come Hang in NYC with Us?
Thanks to your generous contributions last year, your continued enthusiasm in supporting Hope in energy and spirit, and your commitment to maintaining the forward momentum of the Down syndrome community, Hope’s sweet, goofy smile will briefly and surreally be on display in a slideshow airing on the Jumbotron on September 9th!
Pursuing Inclusivity for World Down Syndrome Day
I know it’s not realistic to support every cause, every time an awareness day or month pops up on the calendar, which is why INCLUSIVITY is the single most important mindset we can foster to make the work of caring for all people as streamlined as possible, without sacrificing the energy we reserve for our loved ones.
Start Spreading the News…
Hope is returning to NYC this September and this time, so are we!! You may register for the September 17th walk at anytime, but if you’d like to join team Strive With Hope, NDSS can only guarantee t-shirts if you register by Friday, August 12th.
The Incredible Pressure of Love: World Down Syndrome Day 2022
As parents of these beautiful children, we understand something that isn’t always so evident from the outside: Down syndrome is a blessing. So let these kids into your classrooms, your studios, your camps, your programs, your sanctuaries, and if you’re lucky, you might just catch a glimpse of the magic. But you’ll never know if you don’t try.
Action NEEDED by February 9
Right now the Centers for Medicare and Medicaid Services is drafting guidelines for their Coverage with Evidence Development in the use of the new Alzheimer’s drug, aducanumab, excluding people with Down syndrome and other intellectual and developmental disabilities (I/DD). A quick comment from you could change the course of Hope’s life! Please help.
9/18 NYC Buddy Walk 2021 Information
There is truly nothing I want more than to tell our local community that we are here to stay and that this town and all it has to offer is for Hope, too.
Hope Is Going to Times Square!
Our story doesn’t end in failure, thanks to the confidence instilled in us by the National Down Syndrome Society, the leading human rights organization for individuals with Down syndrome in the U.S., who caught us with outstretched arms while we were falling in a tailspin this past winter.
Shifting Perspectives for World Down Syndrome Day
There is no greater gift you can give this World Down Syndrome Day than to consider whether you have room to shift your perspective on what makes a person valuable and what you or your family can do with this privilege.