9/18 NYC Buddy Walk 2021 Information
There is truly nothing I want more than to tell our local community that we are here to stay and that this town and all it has to offer is for Hope, too.
Tag Archives: trisomy 21
Hope Is Going to Times Square!
Our story doesn’t end in failure, thanks to the confidence instilled in us by the National Down Syndrome Society, the leading human rights organization for individuals with Down syndrome in the U.S., who caught us with outstretched arms while we were falling in a tailspin this past winter.
Shifting Perspectives for World Down Syndrome Day
There is no greater gift you can give this World Down Syndrome Day than to consider whether you have room to shift your perspective on what makes a person valuable and what you or your family can do with this privilege.
A New World Down Syndrome Day Challenge
In the spirit of virtual advocacy, this year we accepted the new NDSS 32.1-mile challenge, which kicks off tomorrow and runs for three weeks. Matt will be rowing his way to 32.1 miles and I’ll be on our Peloton bike, riding under the #Racingfor321 tag. (If you’re on Peloton, please join us!!!)
A Second Child After Down Syndrome
Instead of being scared by tests and appointments, just buckle up and enjoy the crazy ride, because whether your pregnancy is typical or not, your baby will thrive if you smile, laugh, throw your arms up, and declare an unconditional love.
Happy 5th Birthday, Hope!
Take a moment to enjoy the beauty of Hope’s fifth year, which has been our true blessing to witness. Happy 5th birthday, Hope!!
What Is on the Line for Us if Schools Close?
Hope’s equitable place in this world hinges on your ability to control the urge to return to a time that no longer exists. If you can’t do this for yourself, do it for Hope. I promise, when the time comes, she will reciprocate ten-fold the love you’ve shown her in this moment.
Maybe We Can Change the Way We See
Happy Down Syndrome Awareness Month! We advocate not because we want to, but because we need to. We celebrate because we can. Thank you for celebrating with us this year!
The Summer 2020 Playdate
This is the story of a playdate. The playdate. Our children’s first, actual playdate since the term “social distancing” became a mainstay in our vocabularies, a progression from the stay-at-home orders that were put in place in March. This was our one and only playdate of the summer.
Social Distancing a Preschooler With Down Syndrome
Maybe you discover that it really doesn’t matter if your preschooler can tell the difference between a square and a rectangle, considering she conquered the potty and straw drinking on your watch since being home during the COVID-19 outbreak.
